Hi friend,
There's a kind of grief that doesn't get a casserole.
No one sends flowers for it. No one offers to cover your shifts. There's no service, no obituary, no line of people in dark clothes telling you they're sorry for your loss.
Because from the outside, nothing was lost.
Your child is right here. Alive. Loved. Breathing in the next room.
And still — you grieve.
I'm a special needs parent. And I want to talk today about the grief almost no one prepares you for — and about when it actually arrives. Because that part surprised me most of all.
When my son was little, I thought I had already grieved.
And I had — some. But mostly, I was just going.
There wasn't time to sit in it. There were therapy appointments to drive to. Evaluations to schedule. IEP meetings to fight through. Specialists, waitlists, paperwork, advocacy. I was in constant motion, doing the next right thing for him, accepting what was best for him in each season as it came.
Grief is a luxury of stillness. And I had no stillness. I had a mission.
So I told myself I'd made my peace. I thought the hardest part was behind me.
I was wrong.
Because the grief didn't leave. It just waited.
It waited until he got older.
It waited until the kids his age started getting their driver's licenses. Until the graduation photos filled my feed. Until prom pictures, college acceptances, first jobs, first relationships — all the ordinary milestones of teenagers becoming adults.
It hits so differently now than it did when he was small.
When he was little, the gap between him and other kids was a toddler's gap — easy to hold, easy to hope around. He'll catch up. He'll get there in his own time.
But teenagers don't stay still. They launch. And every time one of them launches into the life I once imagined for my own child, I feel the shape of the future that isn't coming for him.
And then there's the part almost no one outside this world understands:
He's aging out of services.
The supports that held us for years, the school-based therapies, the programs, the structure — they fall away right as the distance between him and his peers grows widest. The world stops offering help at the exact moment the difference becomes most visible.
That's its own grief. Quiet. Specific. And almost entirely unspoken.
I'm going to say the part out loud that most of us are too ashamed to say.
Sometimes I'm jealous.
Not of the people. Not of their children. I would never wish my son were someone else.
But I'm jealous of the ease. The ordinariness. The future those families get to simply assume — the one that was quietly taken from us before we even understood it was on the table.
And the second the jealousy shows up, the guilt floods in right behind it.
How dare you. You have a child you love beyond measure. Be grateful. Be grateful. Be grateful.
So we swallow it. We perform the gratitude. We say we're "so blessed" — and we are — while the grief sits underneath, unspoken, growing heavier for never being let out into the air.
Here's what I've come to believe, after years of carrying this:
The grief and the love are not enemies.
They don't compete. One doesn't cancel the other. You are not a bad parent for grieving, and you are not an ungrateful one for feeling cheated sometimes.
You can adore your child with every cell in your body AND mourn the life you imagined for him. Both are true. Both are allowed. Both can live in the same heart, in the same breath, on the same ordinary Tuesday.
There's even a name for this. Researchers call it chronic sorrow — grief that recurs, that doesn't resolve, that comes back around at every milestone your child won't reach. It's not depression. It's not a disorder. It's the natural, recurring grief of loving a child whose path looks different than the one you pictured. And it tends to get louder, not quieter, as they grow.
So, if you're a parent of an older child or a teen, and you're feeling this more now than you did in the early years, you're not going backward. You're not failing at acceptance.
You're just finally still enough to feel what you were too busy to feel back then.
So, what do you do with it?
You stop fighting it.
When the wave comes and it will keep coming, at every milestone, for years — you don't brace against it or shame yourself for it. You let it be what it is:
This is grief. It's allowed to be here. It doesn't mean I love my son any less. It means something is hard, and I'm human.
You let it move through you instead of locking it in your chest.
And then, when it passes, because it does pass, each time — you come back to what is here. Not the milestones that aren't coming. The ones that are.
The progress no one else would even notice, that you celebrate like a graduation. The laugh that's just for you. The love that needs no words.
The grief and the gratitude don't take turns. They live together. Learning to hold both without dropping either — is the whole work.
That's how you carry it.
Not by choosing one.
By making room for both. 🖤
If you're a parent holding this today — especially if your child is getting older and it's hitting harder than it used to — you're doing better than you think. I promise you are. And you are not alone. There are far more of us carrying this quiet grief than you could ever count. We just don't say it out loud very often.
So, consider this me saying it out loud, for both of us.
With you in it, Nichole 🖤
P.S. This kind of invisible, uncategorized grief is exactly why I've been expanding the work I do. Not everything fits into a neat box — special needs parents, veterans carrying what they brought home, survivors rebuilding their sense of safety, anyone holding something heavy the world doesn't quite see. If that's you, and you'd ever want a steady place to set some of it down, my door is open. You can always just reply to this email — I read every one. 🖤
I'll see you next week.
With warmth,
Nichole Marie
Mindset Coach • Speaker • The Real Storytellers

